Awesome videos i watched them all..i have watch johnnys story befor..i am a young lady living with EB too..and his strength puts a smile on my face..much love goes out to him from my heart..he was def a soilder and and amazing person..he is insperational..and def a good role model.

I see what your saying Magicpez, but I think it's a great way of spreading awareness of the illness and will encourage people to donate anyway.

A very moving documentary and inspiring one.

Is DebRA OK with having this on YouTube? Don't they sell this video to raise funds?

I think it's great you're spreading Johnny Kennedy's message but maybe you can just show some clips and then encourage people to buy the whole thing from DebRA.

Very welcome :)

Thank you for adding these wonderfully touching videos ;-)