President Ronald Reagan signed the Orphan Drug Act in 1983, bringing new hope to the 25 mi
President Ronald Reagan signed the Orphan Drug Act in 1983, bringing new hope to the 25 million Americans with rare diseases. Throughout 2008, NORD be celebrating the 25th anniversary of this very successful legislation and of the founding of NORD.
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Added: 1 month ago
Views: 150
Jonny Kennedy died in 2003 aged 36. He had a terrible genetic condition called Dystrophic
Jonny Kennedy died in 2003 aged 36. He had a terrible genetic condition called Dystrophic Epidermolysis Bullosa (EB) -- which meant that his skin literally fell off at the slightest touch, leaving his body covered in agonising sores and leading to a final fight against skin cancer.
In his last months Jonny decided to work with filmmaker Patrick Collerton to document his life and death, and the result was a film, first broadcast in March 2004, that was an uplifting, confounding and provocatively humorous story of a singular man. Not shying away from the grim reality of EB, the film was also a celebration of a life lived to the full.
When it was first shown, The Boy Whose Skin Fell Off captivated nearly 5 million viewers and helped to raise £500,000 for the EB charity DebRA. Channel 4 is re-screening the film and re-visiting Jonny's family to see how they have come to terms with his death and the public's reaction to the film.
Jonny was frank about his feelings on his upcoming death and practical about the arrangements. The film featured moving interviews with his friends and family, including his mother Edna, who had been his life-long carer and faced the prospect of Jonny's death with disarming mixed feelings, torn between relief for Jonny and knowing that she would miss him desperately.
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Added: 7 months ago
Views: 20,851
Jonny Kennedy died in 2003 aged 36. He had a terrible genetic condition called Dystrophic
Jonny Kennedy died in 2003 aged 36. He had a terrible genetic condition called Dystrophic Epidermolysis Bullosa (EB) -- which meant that his skin literally fell off at the slightest touch, leaving his body covered in agonising sores and leading to a final fight against skin cancer.
In his last months Jonny decided to work with filmmaker Patrick Collerton to document his life and death, and the result was a film, first broadcast in March 2004, that was an uplifting, confounding and provocatively humorous story of a singular man. Not shying away from the grim reality of EB, the film was also a celebration of a life lived to the full.
When it was first shown, The Boy Whose Skin Fell Off captivated nearly 5 million viewers and helped to raise £500,000 for the EB charity DebRA. Channel 4 is re-screening the film and re-visiting Jonny's family to see how they have come to terms with his death and the public's reaction to the film.
Jonny was frank about his feelings on his upcoming death and practical about the arrangements. The film featured moving interviews with his friends and family, including his mother Edna, who had been his life-long carer and faced the prospect of Jonny's death with disarming mixed feelings, torn between relief for Jonny and knowing that she would miss him desperately.
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Added: 7 months ago
Views: 10,109
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Jonny Kennedy died in 2003 aged 36. He had a terrible genetic condition called Dystrophic
Jonny Kennedy died in 2003 aged 36. He had a terrible genetic condition called Dystrophic Epidermolysis Bullosa (EB) -- which meant that his skin literally fell off at the slightest touch, leaving his body covered in agonising sores and leading to a final fight against skin cancer.
In his last months Jonny decided to work with filmmaker Patrick Collerton to document his life and death, and the result was a film, first broadcast in March 2004, that was an uplifting, confounding and provocatively humorous story of a singular man. Not shying away from the grim reality of EB, the film was also a celebration of a life lived to the full.
When it was first shown, The Boy Whose Skin Fell Off captivated nearly 5 million viewers and helped to raise £500,000 for the EB charity DebRA. Channel 4 is re-screening the film and re-visiting Jonny's family to see how they have come to terms with his death and the public's reaction to the film.
Jonny was frank about his feelings on his upcoming death and practical about the arrangements. The film featured moving interviews with his friends and family, including his mother Edna, who had been his life-long carer and faced the prospect of Jonny's death with disarming mixed feelings, torn between relief for Jonny and knowing that she would miss him desperately.
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Added: 7 months ago
Views: 12,179
Jonny Kennedy died in 2003 aged 36. He had a terrible genetic condition called Dystrophic
Jonny Kennedy died in 2003 aged 36. He had a terrible genetic condition called Dystrophic Epidermolysis Bullosa (EB) -- which meant that his skin literally fell off at the slightest touch, leaving his body covered in agonising sores and leading to a final fight against skin cancer.
In his last months Jonny decided to work with filmmaker Patrick Collerton to document his life and death, and the result was a film, first broadcast in March 2004, that was an uplifting, confounding and provocatively humorous story of a singular man. Not shying away from the grim reality of EB, the film was also a celebration of a life lived to the full.
When it was first shown, The Boy Whose Skin Fell Off captivated nearly 5 million viewers and helped to raise £500,000 for the EB charity DebRA. Channel 4 is re-screening the film and re-visiting Jonny's family to see how they have come to terms with his death and the public's reaction to the film.
Jonny was frank about his feelings on his upcoming death and practical about the arrangements. The film featured moving interviews with his friends and family, including his mother Edna, who had been his life-long carer and faced the prospect of Jonny's death with disarming mixed feelings, torn between relief for Jonny and knowing that she would miss him desperately.
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Added: 7 months ago
Views: 6,170
Jonny Kennedy died in 2003 aged 36. He had a terrible genetic condition called Dystrophic
Jonny Kennedy died in 2003 aged 36. He had a terrible genetic condition called Dystrophic Epidermolysis Bullosa (EB) -- which meant that his skin literally fell off at the slightest touch, leaving his body covered in agonising sores and leading to a final fight against skin cancer.
In his last months Jonny decided to work with filmmaker Patrick Collerton to document his life and death, and the result was a film, first broadcast in March 2004, that was an uplifting, confounding and provocatively humorous story of a singular man. Not shying away from the grim reality of EB, the film was also a celebration of a life lived to the full.
When it was first shown, The Boy Whose Skin Fell Off captivated nearly 5 million viewers and helped to raise £500,000 for the EB charity DebRA. Channel 4 is re-screening the film and re-visiting Jonny's family to see how they have come to terms with his death and the public's reaction to the film.
Jonny was frank about his feelings on his upcoming death and practical about the arrangements. The film featured moving interviews with his friends and family, including his mother Edna, who had been his life-long carer and faced the prospect of Jonny's death with disarming mixed feelings, torn between relief for Jonny and knowing that she would miss him desperately.
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Added: 7 months ago
Views: 7,950
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http://forums.zizula.com/index.php?topic=424.0
Dr. Robert Beck discusses the blood elec
http://forums.zizula.com/index.php?topic=424.0
Dr. Robert Beck discusses the blood electrofication device that he sifted from obscurity and almost lost due to the media blackout. THIS TECHNOLOGY IS INEXPENSIVE, REAL, AND EFFECTIVE CURE FOR ALL INFECTIOUS DISEASE. THIS IS WHAT THE FDA, AMA, and the Pharmaceutical Drug Lords DO NOT WANT YOU TO KNOW.
Blood electrification. Patent 5139684, granted Aug 18 1992 (filed Nov 16 1990)
Electrically conductive method and systems for treatment of blood and other body fluids and/or synthetic fluids with electric forces
Inventors: Dr. Steven Kaali and Peter Schwolsky
Abstract:
A new process and system for treatment of blood and/or other body fluids and/or synthetic fluids from a donor to a recipient or storage receptacle or in a recycling system using novel electrically conductive treatment vessels for treating blood and/or other body fluids and/or synthetic fluids with electric field forces of appropriate electric field strength to provide electric current flow through the blood or other body fluids at a magnitude that is biologically compatible but is sufficient to render the bacteria, virus, and/or fungus ineffective to infect normally healthy cells while maintaining the biological usefulness of the blood or other fluids. For this purpose the low voltage electric potentials applied to the treatment vessel should be of the order of from about 0.2 to 12 volts and should produce current flow densities in the blood or other fluids of from one microampere per square millimeter of electrode area exposed to the fluid being treated to about two milliamperes per square millimeter. Treatment time within this range of parameters may range for a period of time from about one minute to about 12 minutes.
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Added: 3 months ago
Views: 2,813
http://forums.zizula.com/index.php?topic=424.0
Dr. Robert Beck discusses the blood elec
http://forums.zizula.com/index.php?topic=424.0
Dr. Robert Beck discusses the blood electrofication device that he sifted from obscurity and almost lost due to the media blackout. THIS TECHNOLOGY IS INEXPENSIVE, REAL, AND EFFECTIVE CURE FOR ALL INFECTIOUS DISEASE. THIS IS WHAT THE FDA, AMA, and the Pharmaceutical Drug Lords DO NOT WANT YOU TO KNOW.
Blood electrification. Patent 5139684, granted Aug 18 1992 (filed Nov 16 1990)
Electrically conductive method and systems for treatment of blood and other body fluids and/or synthetic fluids with electric forces
Inventors: Dr. Steven Kaali and Peter Schwolsky
Abstract:
A new process and system for treatment of blood and/or other body fluids and/or synthetic fluids from a donor to a recipient or storage receptacle or in a recycling system using novel electrically conductive treatment vessels for treating blood and/or other body fluids and/or synthetic fluids with electric field forces of appropriate electric field strength to provide electric current flow through the blood or other body fluids at a magnitude that is biologically compatible but is sufficient to render the bacteria, virus, and/or fungus ineffective to infect normally healthy cells while maintaining the biological usefulness of the blood or other fluids. For this purpose the low voltage electric potentials applied to the treatment vessel should be of the order of from about 0.2 to 12 volts and should produce current flow densities in the blood or other fluids of from one microampere per square millimeter of electrode area exposed to the fluid being treated to about two milliamperes per square millimeter. Treatment time within this range of parameters may range for a period of time from about one minute to about 12 minutes.
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Added: 11 months ago
Views: 14,232
Dr. Joseph R. Berger, chair of the Department of Neurology at the University of Kentucky,
Dr. Joseph R. Berger, chair of the Department of Neurology at the University of Kentucky, studies neurological disorders such as progressive multifocal leukoencephalopathy. PML, a rare viral disease, can affect those individuals with compromised immune systems. Dr. Berger provides an overview of pathobiology, clinical manifestations and immunological perturbations.
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Added: 5 months ago
Views: 253
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