Loving Loic Foundation

Loving Loic Foundation

Fighting for Hope. Funding a Cure for PKAN.

We are a Montana-based nonprofit founded by Loic’s family to accelerate gene therapy and treatment research for PKAN (Pantothenate Kinase-Associated Neurodegeneration) — a rare and devastating neurological disease that robs children of their abilities and, ultimately, their lives.

Here, we share the stories of courageous families, cutting-edge research, and the relentless pursuit of hope. Every video represents a step closer to a cure — from lab updates to gala moments to families bravely sharing their journeys.

💛 Watch. Share. Take action.
Together, we can change the future for children living with PKAN.

🔗 Learn more & donate: www.lovingloic.org

📍 Based in Bozeman, Montana | 🌎 Supporting PKAN research worldwide