Tjar

Hey there! I'm on a mission to make a rare syndrome as famous as Kim Kardashian's butt! Okay, maybe not that famous, but I'm doing my best to spread the word and help people get the right diagnosis. As a proud mom of two boys with this syndrome, I know how important it is to have accurate information and support.

When I'm not raising awareness, I'm belting out tunes like a karaoke queen. I love singing and sharing my hobby with others. If you have any tips or suggestions for my records, please let me know! 

Oh, and did I mention I also run a webshop? It's like Amazon, but better (okay, maybe not better, but still pretty cool). We've got all kinds of goodies, so check it out and treat yourself to something nice! 
https://www.etsy.com/nl/shop/Tjarvespecialgifts?ref=seller-platform-mcnav