Batten Disease Family Association

The new you tube channel of the Batten Disease Family Association. Batten disease is an ultra rare, fatal neurodegenerative disease that affects children. There are 14 known types of Batten disease and 102 families are currently living with the condition in the UK. There are many more families who have lost their child to this cruel condition.  This channel is for the incredible, resilient, positive community of families to share their experiences and raise awareness.