Jeff Parke

Care Partner Transplant Link exists to end the quiet exploitation of care partners in transplant and kidney care by making them visible, protected, and central to every decision that touches a patient’s life. Today, families absorb complex medical, logistical, and emotional work that the system depends on but rarely recognizes, funds, or designs around. Our starting point is simple and unapologetic: care partners are not background “support.” They are co‑clinicians, co‑historians, and co‑survivors. Any care model that treats them as optional, invisible, or endlessly available is unsafe by design.What makes this coalition different is that it is built from the inside out. Patients and care partners sit at the center, not the edges, working alongside clinicians, social workers, policymakers, and community leaders to co‑design what better looks like.