Melissa White Boyer

Hi, I'm Melissa… author, mom, nonprofit founder, cancer survivor, and advocate for families navigating the unexpected.

My son was diagnosed with a rare genetic disease, and that moment changed everything… our family, our purpose, and the way I see the world. I wrote I Am Rare to give children like her a story that says: you belong here.

This channel is where I share all of it… the book journey, the behind-the-scenes of building Rare Genes Movement, the messy and beautiful reality of special needs parenting, and what it looks like to keep showing up after cancer tries to take everything from you.

If you're a parent in the thick of it, an advocate, or someone who just needs to know they're not alone… you're in the right place.
New videos regularly. Subscribe and come along. 💙