Team Callum

Hi, we’re Team Callum — and this channel is all about our journey with STXBP1, a rare genetic disorder Callum was diagnosed at two years old. Since then we’ve been on a mission to give him every opportunity to thrive. That means raising awareness, funding cutting-edge STXBP1 research, and helping him access the specialized therapies he needs.

Here, you’ll see:
    •    Updates on Callum’s progress and milestones
    •    Behind-the-scenes from our fundraisers, benefit concerts, and silent auctions
    •    Insights into rare disease research, gene therapy advancements, and clinical trials
    •    Support and connection within the STXBP1 family and broader rare disease community

Every video we share helps shine a light STXBP1 and moves us closer to better treatments — and one day, a cure. Subscribe to follow Callum’s story, support our mission, and be part of the hope for every family affected by STXBP1. 💜 We are rare but not alone