Myotonic Dystrophy Foundation

The Myotonic Dystrophy Foundation (MDF) is the leading global advocate helping patients and families navigate the myotonic dystrophy (DM) disease process, and is often the first resource contacted by newly-diagnosed patients, their families, their social workers and their physicians around the world. For many international patients, the Myotonic Dystrophy Foundation is often the only resource they are able to locate, and MDF has provided assistance and support for people living with DM in more than 80 countries around the world.

MDF is a non-profit, 501(c)(3) organization based in Oakland, CA, and founded in 2007 by families living with myotonic dystrophy (DM). 

Our vision is a world with treatments and a cure for myotonic dystrophy.

The mission of the Myotonic Dystrophy Foundation is Community, Care, and a Cure:
+ We support and connect the myotonic dystrophy community.
+ We provide resources and advocate for care.
+ We accelerate research toward treatments and a cure.