Neon Window

Neon Window is a non-profit that makes documentary films spotlighting rare disease stories and gets them in front of audiences that move outcomes.

Our mission is to transform the story of every person living with a rare disease into an actionable insight that will accelerate research, inform policy, foster empathy, and strengthen the community that saves lives. Rare disease patients and families share their stories with courage and urgency, only to have those stories go unheard – often muted by restrictions from industry regulation or lost in the noise due to limited nonprofit and patient advocacy resources.

As an independent non-profit, we create high production value, short documentaries and pair them with a targeted distribution engine that reaches the audiences who can act: researchers, clinicians, caregivers, advocacy leaders, and policymakers.