Indo US Organization for Rare Diseases

IndoUSrare is a humanitarian non-profit 501(C)(3) tax-exempt public charity organization based in the US, which addresses the unmet needs of diverse patients with rare diseases globally. With an initial focus on the Indian diaspora, our goal is to build cross-border collaborations to connect stakeholders of rare diseases in low- and middle-income regions—such as India—with their counterparts and clinical researchers in the US. This would allow to improve the diversity of clinical trial participants, accelerate research and development, and improve equitable access to life-saving therapies to diverse populations of rare disease patients.