MyFSHD

MyFSHD -- based in Reno, Nevada, USA -- is a source for education about all-things-FSHD. Scientists Drs. Peter and Takako Jones, whose sole focus is facioscapulohumeral muscular dystrophy, other scientific contributors, and ambassadors across the globe who battle the disease, aim to help the worldwide FSHD patient community find answers about their FSHD status through education, advocacy and saliva-based FSHD research testing accessible worldwide, at no cost to individuals. 

Visit MyFSHD.org. Tune in to MyFSHD Podcast with Dr. Peter Jones and guests (Spotify, Apple, Google, Amazon Music, Audible - search MyFSHD). Stop by Facebook: Facebook.com/MyFSHD.org.