gabrielle824

My name is Danielle, and I am Gabrielle's mother. 

My sweet daughter has been diagnosed with a fatal disease, and she is running out of time.  Niemann-Pick Type C is a genetic metabolic disease in which the body is unable to breakdown lipids. In Type C of this disease lipids are stored primarily in the brain. These deposits replace healthy cells causing multiple neurologic problems, including balance and coordination difficulties, motor skill delays, and speech problems.  Type C is diagnosed in early to mid childhood and life expectancy after diagnosis is merely 6-10 years.  We have an opportunity to participate in experimental treatments overseas which may have a huge impact on her progression.

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