foundation for ichthyosis

The Foundation for Ichthyosis & Related Skin Types, Inc. (FIRST) is a national nonprofit foundation.  Our mission is to educate, inspire, and connect those touched by ichthyosis and related disorders through emotional support, information, advocacy, and research funding for better treatments and eventual cures.

FIRST provides information about ichthyosis through our website, www.firstskinfoundation.org, via printed publications, our quarterly newsletter, and through our lobbying and advocacy efforts.  Our signature event, the National Family Conference, provides attending families an opportunity to forge unforgettable connections with each other and to consult with leading medical experts.  FIRST also hosts smaller one-day regional meetings.